Article written by Lauredhel

Lauredhel is an Australian woman and mother with a disability. She blogs about social justice, reproductive justice, freedom from violence, the use and misuse of language, medical science, being disabled, her garden, and whatever else pops into her head.

Lauredhel also blogs at FWD/Forward (feminists with disabilities), scribbles at her personal dreamwidth journal Selective and Arbitrary, and co-moderates Hollaback Australia. She joined Hoyden About Town in 2007.

5 responses to “Then and now: on acuteness and chronicity.”

  1. madeinmelbourne

    Oh, how clearly I hear that.

    Even though I’m unable to work due to my disability, my spouse earns “reasonable” money. Therefore, I have no health-care card. Which means I pay a huge amount for my medication. And doctors appointments. Which means our one-wage-supporting-two-people also supports a huge wad of cash going to the very disability that means we are on one wage.

    But no health care card for me!

    Not to mention the difficulties receiving adequate care for a condition that many doctors are woefully unprepared to deal with. And the list of referrals to other people they think may be able to deal with you (which actually means they want to make it anyone’s problem but theirs).

    I love medical care when you’re not in a position to complain by taking your business elsewhere!

    madeinmelbournes last blog post..A new timewaster

  2. amandaw

    Yes.

    Anytime I go anywhere, it must be planned for. In detail.

    Health care isn’t a matter of “Oh no — I had to wait four days for my yearly checkup!” It’s a matter of “Oh no — I’m almost out of medication and my insurance is delaying a refill via any tactic they can think of.” “Oh no — I’m having stomach and back pain so awful I can’t sit upright, and every doctor I go to is detached and dismissive, and I still have no idea what’s wrong.” “Oh no — I moved across the country and now I have to find new doctors, and I don’t know if they’ll believe my condition is a legitimate one, much less believe my self-reported symptoms, or whether they will be knowledgeable about my condition(s), or whether they will care enough to follow through in seeking effective treatment. I am probably going to end up waiting a good six months or a year before finding a reasonable doctor, having consulted probably a dozen or three along the way.”

    All of which have applied to me or do apply to me now.

    I hear you on “sick enough” vs. “well enough.” It’s the same calculus for me. Same with school and work, too.

    amandaws last blog post..What was that again?
  3. blue milk

    I don’t know what you’re going through but it sure sounds tough. My thoughts are with you and you’ve opened my eyes up.

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